this is a brief video discussing some of my thoughts on the dynamics between caregivers, friends, allies, family, and patients with this horrible disease and how sometimes love and support isnt enough to save them.
it was inspired by something heather colman McGill said but this is wholly my interpretation and I sadly cant ask her for her take on it . It’s just hat what she said stuck in my mind a lot
this might be valuable to you if you are a family member or caregiver or friend of someone with me/cfs and are troubled by the whole situation and questions of how to support them
Tags: ME/CFS, chronic illness, craniocervical instability, mcas, mast cell activation syndrome, mold avoidance, long covid, covid long-hauler